Executive Director, Epilepsy Foundation of Wisconsin

Remote

Full Time

Experienced

Organizational Overview
The Epilepsy Foundation of Wisconsin is dedicated to improving the lives of individuals and families affected by epilepsy through education, support, advocacy, and access to care. As a key leader in the epilepsy community, the Foundation works to ensure that no one faces the challenges of epilepsy alone.

Position Summary
The Executive Director (ED) serves as the chief executive of the Epilepsy Foundation of Wisconsin, providing strategic leadership, operational oversight, and public representation for the organization. A key focus of this role is fundraising and donor engagement to ensure the sustainability and growth of programs that serve people affected by epilepsy across Wisconsin.

Key Responsibilities

Leadership & Strategy

Provide visionary leadership in alignment with the Foundation’s mission and values.
Partner with the Board of Directors to develop and implement strategic goals and measurable outcomes.
Cultivate a positive, collaborative, inclusive, and mission-driven culture.

Fundraising & Development

Lead all aspects of fundraising, including individual giving, sponsorships, foundation grants, and events.
Develop and maintain relationships with donors, funders, and community partners.
Collaborate with board and staff to implement a comprehensive fundraising plan.
Represent the Foundation in philanthropic networks and fundraising communities.

Community Engagement & Advocacy

Serve as the primary spokesperson to raise awareness and visibility around epilepsy-related issues.
Build and nurture partnerships with healthcare providers, schools, and advocacy groups.
Support legislative and policy advocacy efforts.
Oversee public communications including newsletters and social media.

Program Oversight

Ensure effective delivery of education, outreach, and support programs (e.g., Seizure First Aid, Ammon’s Horn, camps, retreats, ambassador program, support groups).
Monitor and evaluate program impact, aligning services with community needs and funding priorities.

Operations & Financial Management

Oversee budgeting, financial reporting, and compliance in coordination with the Board Treasurer and accountant.
Lead and support a small team (3 staff members and a student intern), as well as volunteers.
Ensure compliance with legal and nonprofit best practices.

Board & Staff Liaison

Serve as a bridge between day-to-day staff operations and strategic decision-making by the Board.
Participate in board meetings and committee activities as needed.

Qualifications

Demonstrated success in fundraising, including major donors, sponsorships, and events.
Strong public speaking and relationship-building skills.
Effective time management and creative problem-solving ability.
Solid financial and organizational acumen.
Deep passion for the mission of supporting individuals with epilepsy.

Preferred Qualifications

Proven leadership experience in nonprofit management or a related field.
Background in health advocacy, public health, or disability services.
Familiarity with Wisconsin’s nonprofit and philanthropic landscape.
Experience with donor databases or CRMs (e.g., Donor Drive, HubSpot).

Pay Range

$70,0000 - $75,000

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Epilepsy Foundation provides advocacy efforts, research and funding, and epilepsy and seizure first aid education and training. To learn more about us, please visit https://www.epilepsy.com/about. If you have professional, volunteer, or other affiliations with other groups in our field, please list them below. Disclosure of outside affiliations is not necessarily disqualifying, and may in fact strengthen your candidacy, but is intended for Epilepsy Foundation to evaluate and resolve actual or apparent conflicts of interest that may be presented by your candidacy.*

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